To improve skills and entrepreneurial competences for advancing economic and social innovation in central European regions
Innovative patient centred health care services – advantages of establishing a close network in celiac disease patient health care
Healthy and active aging is one of the greatest social challenges in EU facing longer life expectancy. Early prevention of chronic diseases that have severe impact on general well-being of patients is extremely important if we want to reach this goal and ensure sustainable health care systems in CE. Lack of development and promotion of innovative quality health services, disease management models and education have a profound negative effect. To tackle this challenge, this project will demonstrate development and pilot testing of innovative health service model in management of celiac disease (CD), by using CANVAS business model, aiming at improving knowledge, management and organizational capacities. CD is a model of a lifelong disease caused by ingestion of cereals. It affects 1-3% of population (up to 5 million in CE) of all ages. It is estimated that 80% of people having CD are un/misdiagnosed. Diagnostic delay remains 6-10 years. Undiagnosed/untreated CD leads to a number of severe (potentially preventable) complications: infertility, osteoporosis, neurological disorders, malignancies, etc., which have profound effect on quality of life. CE regions have different knowledge capacities and health care systems, which are insufficient and only partially address current problems. By transnational cooperation and analysis of differences in diagnostic approach, experts' knowledge and patient awareness and satisfaction and benchmarking of existing patient management models we will gain important data to develop e-learning tools for health care personnel and patients, to close the knowledge gap between stakeholders and to improve patient support. In each region an innovative pilot services will be tested, based on which a universal model will be designed including organizational improvements and implementation of best practices. This will enable us to develop a patient centered health care service, and thus ensure healthy and active aging of CD patients.
|Project output number||Project output||Project output quantification|
|Output O.T4.1.1||Policy recommendations||1,00|
|Output O.T1.1.1||Assessment of Celiac Disease management practices||1,00|
|Output O.T2.1.1||E-learning tool for HCPs||1,00|
|Output O.T2.2.1||E-learning tool for patients||1,00|
|Output O.T2.3.1||ICT App for HCPs||1,00|
|Output O.T3.1.1||Development and implementation of 10 pilot projects||10,00|
HRT RADIO PULA " Stetoskop” presented the celiac disease and Focus in CD project. Special guests on the broadcast were: Dr. Goran Palčevski (University Hospital Center Rijeka), Marina Milinović (Association of celiac patients Primorsko - goranska County) and Đitka Bartolović (Association of celiac patients Istria County).
The general public was informed about celiac disease, about life with celiac disease and about daily problems of celiac disease patients.
Project partner “Association of celiac patients Primorsko – gorska Country” organized a meeting with preschool educational institutions to inform them about Focus in CD project.
Kindergarten CPO "Potok" Rijeka was the first one in Croatia with a separate gluten free kitchen and a special care for small celiac disease patients.
They are interested about latest news in the field of celiac disease and project achievements.
Project partner “Association of celiac patients Primorsko – gorska Country” presented the project Focus in CD in the TV show "Good Morning Croatia"/ "Dobro jutro Hrvatska". The general public was informed about the Focus IN CD project, work package activities and benefits for chronic patients.
One of the important goals of the Focus IN CD project is assessment of the current practices in Coeliac diseases management in Central Europe. This will enable us to better understand the differences in the region and possible existing gaps, and will be the basis for more focused development of e-learning tools. Surveys are ready and participants have already been invited to provide their data.
The meeting was attended by doctors who work at the gastroenterology units of the hospitals of the region Friuli-Venezia Giulia (Trieste, Gorizia, Tolmezzo, Udine, Pordenone) that performs the diagnosis of celiac disease and follow-up of patients.
The meeting was also attended by researchers where research is conducted on celiac disease (University of Trieste, IRCCS Burlo Garofolo and IRCCS Centro di Riferimento Oncologico) and by a nutritionist who coordinates the care of patients with celiac disease, diabetes and other chronic diseases.
During this meeting the project "Focus on CD" was presented. The initial details, on possible collaborations on the diagnostic procedure and the use of the platform “early nutrition”, were implemented.
The meeting was organized as a training event for young paediatricians, nutritionists, food technologists and psychologists. Seminars included information on Celiac Disease, Diabetes, dietary requirements etc.
The aim was to make the public able to manage the creation of a teaching program/presentation in the field of celiac disease and diabetes. This knowledge will be later used during the training activity in schools and public events.
The project implementation training on 22 November 2016 took place in Zagreb, with the main aim to provide project partners with information, support and advice on better implementing the projects. The presenters answered a lot of different questions about how to prepare progress reports and how to ensure a sound project implementation.
To kill two birds with one stone, we organized a Slovenian - Croatian project partner meeting before the end of the first reporting period to better manage the complex tasks of the project. It is the first time to participate in a European project for Focus IN CD Croatian partners University hospital center Rijeka, regional Association of celiac patients from Rijeka as well as the third Croatian partner Primorje – Gorski Kotar County.
On Friday, 7th October 2016, at the headquarters of the Primorje-Gorski Kotar County, Slogin kula 2, 51000 Rijeka, the partners of the “Focus IN CD” project from Croatia and Primorje-Gorski Kotar County, have organized the joint press conference to present the project to the general public.